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How Misdiagnosis Prevented Me from Moving on to Recovery – guest blog post

How Misdiagnosis Prevented Me from Moving on to Recovery

By Andy (“Electroboy”) Behrman

 

When I was diagnosed with bipolar disorder, I believe I slipped further and further into the dark abyss. I thought I would never come back and lead a normal life.

For more than ten years, I was misdiagnosed with depression by more than eight mental health care professionals. It all began with my first visit to a therapist who termed my condition “adolescent depression,” and from there I met several doctors along the road who continued not only to diagnose me with depression, but to treat me with medication for depression. Needless to say, this was a disaster, as the medication only served to fuel manic behavior. It wasn’t clear to me at the time, but I was being diagnosed improperly because I only visited these doctors during dark periods of depression and I was not accurately presenting the symptoms of my illness. or honestly answering questions about my condition. In retrospect, had I shared more information with them, perhaps it would have been easier for these doctors to diagnose me correctly and treat me more quickly.

And certainly, I would have suffered for so many less years.

But this is all water under the bridge now.

When I was finally diagnosed with bipolar disorder (or what was referred to manic depression at the time), I was shocked by both the diagnosis and the label “manic depression.” I was officially a manic depressive. What did that mean?

First, I didn’t know anyone else with the illness, and I panicked because I thought the illness was degenerative. “Will I make it to my next birthday?” I asked my doctor.

I was reassured that I would, but that I would also need to begin a regimen of medication to control my symptoms. Yes, the common ones, which I had not only taken for granted to be “normal” but which were slowly destroying my life. These included a roller coaster of racing thoughts, insomnia, overspending, sexual promiscuity, poor judgment and drug and alcohol abuse which always ended in outbursts of rage, deep depression, suicidal ideation and at times, complete paralysis. How could I live on medication with my raging personality tamed? Would I become dull and boring? After all, I had always been “Mr. Fun,” the guy standing with a lampshade on his head, a margarita in each hand and doing the merengue at parties.

Treatment finally began. In the course of the next decade, I would try more than 37 different medications to control my bipolar disorder and experienced almost every possible side effect from each medication: muscle stiffness, headaches, agitation, sleeplessness and grogginess, to name a few. Ultimately, when my doctor realized that no combination of medication was going to work for me, I opted for the last resort – electroconvulsive therapy or ECT to pull me from the depths of my depression. Without a doubt, ECT provided me with some relief in the beginning (but there was the side effect of short term memory loss) until I relapsed three months after the last treatment. It was then that my doctor ordered me to continue “maintenance treatment.” I had a total of 19 electroshock treatments, until I realized I had become addicted to the premedication of the procedure and asked my doctor to bring the treatment to a halt.

Needless to say, these were trying years and I was without hope. I wasn’t working, I was collecting disability and receiving financial assistance  from my friends and family, and basically I was a “shut in” living in my apartment in New York City. I never imagined a life outside this 600 square foot area again. And I had been a highly functional public relations agent and art dealer (albeit my illness had landed me in prison for a brief six month stint for counterfeiting).

Now I was barely capable of taking care of myself (cooking and showering were exhausting because of my depression) and could only watch television. I didn’t even have enough focus to read or write.

But about fifteen years ago, there appeared a light at the end of the tunnel for me. My doctor had found a combination of medications that kept me relatively even-keeled  and I was able to get back to a more normal life. I was working again and I had reestablished a social life.

I was even able to take care of myself. But there was a five-year block of time when I was completely disabled and I can’t think of any accomplishments during this period of time, any memorable events or any happiness.

Of course, as soon as I become “even-keeled” and was functional again, I was certain that my bipolar disorder had gone away – simply vanished.

I was wrong. Now I was coping with the illness, and I was tested nearly every day. I must admit that I still take each day as it comes. I’m always prepared for a crash or a relapse Even though I have ten years “under my belt” of being relatively “episode free,” I’m always on alert.

I’m resigned to living with my mental illness for the rest of my life.

The fear and shame are gone; I speak about my illness openly with both family and friends and have even ventured out into the public arena, sharing my story of my battle with bipolar disorder in “Electroboy: A Memoir of Mania,” published by Random House. This was probably the hardest thing I had to do with my illness – to go public. But I did it because I wanted people to know that there were millions of people suffering with depression and bipolar disorder in this country – and millions more undiagnosed. And I thought that my sharing my story – a very personal story – would bring people out of the closet to seek treatment, help family members in understanding their loved ones, and also help mental healthcare professionals in treating their patients.

Since my diagnosis, educating people about mental illness has become my mission, and it’s been a long journey for me, but a very rewarding one.

Learning to cope with the illness has been tremendously satisfying for me, and passing on my knowledge of my coping skills is the most important thing that I can do with my life. And every day I remind people suffering, that there is hope – – you will get better.

BIO: Andy Behrman is the author of “Electroboy: A Memoir of Mania,” published by Random House. His book has been translated into seven languages. He is a mental health advocate and speaker who promote mental health awareness and suicide prevention, speaking to college audiences, mental health care professionals and local and national mental health support groups. His writing has appeared in “The New York Times Magazine,” “New York Magazine” and he is a frequent contributor to mental health websites. He has appeared on Anderson Cooper 360, NPR Radio and on the cover of Bipolar Magazine. He was interviewed by Stephen Fry for his documentary, “Secret Life of a Manic Depressive” which aired on the BBC. Behrman maintains a website at http://www.electroboy.com and can be found on Twitter @electroboyusa He lives in Los Angeles with his two daughters who are five and seven where he is waiting for the feature film of “Electroboy” to go into production in August 2013.

Understanding Chronic Depression, Dysthymia – guest blog post

Understanding Chronic Depression, Dysthymia

by Jennifer, also known as the Always Sick Chick

Dysthymia (dysthymic disorder, chronic depression) is a form of “mild” depression that is ongoing, lasting 2 years or more in adults or 1 year or more in children and teens, and affects 10.9 million Americans aged 18 and up.

Like many of the different types of depression, dysthymic disorder can have crippling effects on the sufferer and her family Why did I say, “Her?” because dysthymic disorder affects women much more often than it affects men.

Symptoms of Dysthymic Disorder

Do you have dysthymic disorder?  If you are an adult and have had the following symptoms for at least 2 years, you may be suffering from dysthymia:

  • Feelings of  worthlessness, helplessness, hopelessness
  • Persistently low self-esteem
  • Changes in appetite, whether it’s eating significantly more or less
  • Loss of Interest in life, self, things that once interested you
  • Persistent Feelings of Guilt
  • Sleeping Issues, sleeping too much or not enough, Insomnia
  • Chronic Fatigue,
  • Loss of Motivation (everything feels like a chore)
  • Hard time making decisions, even minor ones
  • Difficulty Concentrating, Dysthymia is often misdiagnosed as ADD (Attention Deficit Disorder)
  • Anxiety & Panic Attacks
  • Persistent and unexplained aches and pains
  • Thoughts of death or suicide.

What Causes Dysthymic Disorder?

As with most conditions of depression, the causes of dysthymia can vary from person to person.  While some doctors look life stressors as the main culprit, others focus on changes in brain chemistry and serotonin.  Still others look at a combination of the two.

People living with dysthymia have trouble coping with change, especially if that change is a metaphorical curve ball that smacks them in the face.  Recovering from such a blow is difficult for sufferers of dysthymic disorder.

Life stresses that can cause dysthymic disorder or make its symptoms worse include:

  • Medication
  • Chronic Illness (self or a loved one)
  • Work Issues
  • Relationship Problems

Why Dysthymia or Chronic Depression is also called “Mild” Depression?

Mild depression is misleading when describing dysthymia.  However dysthymic disorder isn’t as severe as major depression that keeps a sufferer from completing most daily tasks on a regular basis.  People living with dysthymia may lack energy and motivation, but are generally able to handle their day-to-day talks and obligations for the most part.  Of course, some days are better than others.

Dysthymia patients have been described as people who function fairly well on a daily basis but are consistently unhappy.

What are the Treatments for Dysthymia?

Dysthymia, like most forms of depression, are treated in the following ways:

  • Lifestyle Changes
    • Diet
    • Exercise
    • Spend more time outdoors
    • etc
    • Therapy
    • Medication
    • Socializing
      • Time with friends
      • More time with supportive family members
      • More time doing the things they love

I was in therapy for several years, off and on. However, I am not currently in any form of therapy.

To treat my dysthymic disorder, I have tried various lifestyle changes such as getting more exercise, spending more time outdoors, and getting more sleep to ensure.

I socialize as much as I can (not online).  I take my kids out to play dates with people we enjoy spending time with.

I currently take Prozac and Effexor.  I have also tried Paxil.  Different medications work for different people, so a discussion with your doctor and some trial and error will occur during treatment if you decide to pursue medication for depression.

Do you think you have Dysthymic Disorder?

Make an appointment to see a therapist or doctor as soon as possible.  If you are currently contemplating hurting yourself or ending your life, call 9-1-1 immediately and contact a friend or family member.

Bio: Jennifer, also known as the Always Sick Chick, has lived with dysthymia for 15 years.  She writes about her trials and tribulations with anxiety, depression, and other chronic health conditions on her web site Always Sick and Tired.

How did the SpeakEasy Production of Next to Normal affect you?

Did you attend an Ask the Doctor talk back session after the 4pm Saturday Matineee? Was it helpful to you? Please let us know how.

Here is a comment left on the SpeakEasy Stage Blog about the 4pm performance on March 10, 2012:

I attended “Next to Normal” with my mother today and was completely blown away by the authentic and genuine performance. My older brother is 31 and has struggled with bipolar disorder long before he was officially diagnosed 10 years ago. While today’s performance was extremely difficult to get through since it hit so close to home, I have to aplaud the entire cast and crew for doing an amazing job of showing the intense and dynamic struggles that effect any family touched by mental illness. While I was a bit too emotional to raise my hand during the Q&A session after the show, I really wanted to let the cast know that both my mother and I thought they really “hit the nail on the head” and honestly made me feel like I was watching a mirror image of my own family. Its a daily struggle and one that, no matter the medications or therapies my brother is on at any given moment, we have to remind ourselves, nothing is permanent or consistent. Some days are great, some make you feel like you can’t handle it any longer. But this play; the actors, the music, the message, spoke to me and made me realize  that maybe…”next to normal” is normal…maybe more families go through this than we realize. And attending this show and watching the emotional responses of those in the audience gives me hope that people are open to learning more about this difficult disease. I thank the entire cast for a beautiful and gripping performance that touched me more than I ever expected (I should have brought more tissues!!!!) Keep up the amazing work and I will be sure to recommend this show to everyone!

 

If you’re interested in finding out more visit their website here.